May 18, 2015

Sarah's 17th Birthday

Sarah loves rock climbing and bouldering.  Unfortunately, Inner Peaks is the only indoor facility that we now of and they are 35-45 minutes away.  But it has become a birthday tradition for of to some extent.  So yesterday we took her along with Daniel and Steven, a friend from Gavel Club an Engineering this year.  Sarah had a free climbing and gear since it was her bday and the boys paid their own way so it was really inexpensive in the long run.  All we did was drive them and feed them.

17 years ago, on a Sunday much like yesterday, a little after the morning church services were over, Sarah Katherine Gibson made her debut.    She has been such a joy to raise.  Yes we have had our difficulties like all parents do but all in all we have been so blessed to have the privilege of raising her. 

Happy Birthday Sarah!

Here are some photos of the day.


 At Lunch

Daniel

Steven & Daniel





Steven & Sarah


Daniel at lunch

Steven at lunch



May 12, 2015

No real improvement with pinched nerve

Visit to the Dr yesterday was not encouraging. He said when I fell out of bed 12 days ago it really set me back.  I go back on Thursday and if things aren't better I'm probably headed next to a neurosurgeon.  Please continue to pray.  I'm in constant pain and getting very discouraged.





May 1, 2015

If it's not one thing it's another

Last night I fell out of bed and hit my head, jaw, right arm and reinjured my pinched nerve which had been on the mend.  The look on Dr Halls face when I told him what had happened was not good.  This may be a major setback  and he told David to watch for signs of a concussion.

This is going on 6 weeks that I can't do much of anything.  I can't drive, cook, crochet, or even fold laundry.  I'm starting to loose hope in ever getting better.   I'm seeing my family doc on Monday about the discoloration on my face.  Today it does appear lighter and the bruising around my eyes is less and my right eye is not as droopy as it has been.   There is so much going on that it's becoming very hard to have any positive outlook or thoughts.

No job in sight for David but Dole did ask him to apply for a job. 

Please continue to keep us in your pr@yers,

Susan



Scrambled eggs with asparagus, grape tomatoes, bacon & sweet onion.  YUM...ME

Apr 30, 2015

The Face of Migraine Disease

 
 
 I use the following on my face in this order: Trader Joes moisturizer with spf, e.l.f. tone adjusting face primer (green), Loreal BB cream in fair, physicians formula loose mineral powder, rimmel lipstick as both blush and lipstick. I wash with witch hazel. If I feel I need more coverage I add Loreal magic nude liquid foundation AFTER the BB cream

Update on my pinched nerve

Update on my pinched nerve in my neck.  I saw Dr Hall and he said that at this point I'm avoiding surgery by a hair.  So I still have to take it very easy and he told my to stop eating all wheat, corn, and anything with high fructose corn syrup.   This in addition to reading labels for al my migraine triggers.  BUT the easiest way to do this is to only eat fresh foods.  I don't eat a lot of premade to begin with but I do use commercial salad dressings and I love almost all forms of pickled veggies.


Daniel in the white shirt, back to the camera, taking Krav Maga

Sarah holding Granddaddy's cat April.  April LOVES Sarah.

Apr 27, 2015

The Face of Chronic Migraine Disease

This what migraine disease has done to my face. So thankful for makeup that does a pretty good job of masking it without feeling like I've spackled my face.  Tomorrow I will try to remember to post photos with makeup on and the products I use.
 



 

Apr 20, 2015

Will YOU share and help?

Ok Folks. What is UP? Samantha's fund raiser has been shared 245 times yet only 9 people have helped.
Is this event not "flashy" enough? Is It not dramatic enough?
How's this for drama? Samantha sleeping in a bed like each of us do at night, causes her to run fever a lot of the time. Remember the lovely and short lived NC snow storms we have? It is dangerous for Sam to bundle up and go outside to sled with her friends because her body can't self regulate and her temp... will drop extremely fast and she can go into hypothermia.
There is much more that I could tell you but will save for another post.

This family are personal friends of ours. I do NOT share fund raisers that I feel are frivolous. Donations to Samantha will mean she can continue to get the medicine, equipment, therapies etc that she needs to live.
I was overwhelmed with the support my friends showed us and continue to show us.
If you want to give and remain anonymous then contact me and I will give you the address to mail a money order.
Please share
Please pray
Please Give!
 

Apr 4, 2015

Favorites

Post-It notes are one of my favorite inventions.  They are so versatile.  I use them in sewing, crocheting, reading, planning, remembering, listing, and on it goes.

I do NOT think however I would use them in home decorating.

decorating? Umm, NO!


Apr 3, 2015

This is Samantha, Would you share and help?



This is Samantha.



 An 18 year old dancer, musician, artist, lover of animals, & anti bullying advocate.  In many ways she is your typical teen.  She likes hanging out with friends, painting her nails, shopping...In many other ways she is not.  The following was written by Sam's mom and my dear friend Jodie.

Sam was born with  static encephalopathy and a unique,  extremely rare chromosome disorder. Because it is so rare there have been no studies done on it and no name for it. The Genetic Drs are calling it "Xq25-Xq26.3 chromosome duplication disorder" because that is the link of her duplication.

 Due to this genetic disorder she has many other health issues and is really small. For example her foot is a size 2 kids, its as long as my hand and her hands are small as a toddlers. 


 She has Secondary Mitochondria, cerebral palsy, oral motor apraxia, asthma, gerd, Bile gastrisis, learning disabilities, sleep apnea, autonomic issues, Thermal dysregulation, and other health issues.

 As a baby she grew really slowly and had a diagnosis of failure to thrive, and was delayed in all of her physical abilites. She had many doctors, testing, and thearpies. As time went on we adjusted and she learned things, even if that process was and is slower than others.

   Now she is a beautiful 18yr old, kind and caring teenager. Biologically she is 18, but because of the delays and static encephalopathy she is more like a 12 yr old. Within this last year she has had new medical issues emerging. The doctors believe these issues stem from the Genetic abnormalites. We just have to try and deal with stuff as it appears. 

     We just took a trip to Wisconsin Childrens hospital to see speacilists, which was an out of state trip for us. They put her on many Mitochondrial supplements, like Coq10.

 She was also diagnosed with Thermal dysregulation. She doesn't sweat and her body does not regulate her temp. very well. She has to be extra careful of the heat and the cold. So she doesnt get heat stroke, or hyperthermia. Just taking a nap under covers, causes her to run a fever. We need to order her a cooling vest and a cooling blanket which aqre expensive.

     She has episodes where she loses time and what is going on around her, leaving her confused and unsure what just happened. The neuro-surgeon we saw and her local neurologist believe she may be having seizures that are deep enough in the center of the brain that they aren't showing up on the EEG tests. So they are sending us to another specialist at Duke University. They said they may do a special MRI or a PET scan. The large gaps of missing time really concern us and her doctors. So we are trying to get to the bottom of this issue.

      She also having a lot of trouble with her stomach, eating, and digestion. She has more tests coming up for this. Depending on these tests, and if she continues to lose weight, they are talking about a G-tube (feeding tube) in the future. They have her on nutritional drinks "neocate splash" to hopefully help her maintain her weight, and a high calorie diet. She been dealing with vertigo, migraines, nausea, abdominal pain, body pain also.

    Because of her static encephalopathy and learning disabilities, Samantha is delayed and has to attend some thearpies and counseling. Pyscologically there is a lot to deal with. Any help we can get her to make things better for her to deal with daily life issues and situations would be great. We just want her to be as happy and healthy as she can be. To live the best she can later in life as a productive member in our society.

     This is the best I can do to sum up the issues without going on for many more pages. A child with disabilites needs many services and it can be overwelming finacially, no matter how much you do to keep up with it. Her mitochondrial supplements alone are extremely expensive and not covered by insurances. Not to mention, copays, hosptial bills, etc. I thank you so much for taking the time to read some of her story. If you can donate to our fund to help Samantha get the continuing care that she needs we thank you sooooo much. Sharing the link to this page, so others can see it is also a great help. Thank you


Please share. I know there are many, many needs to fill. I certainly cannot meet them all. But GOD can! Quite often He uses us to bless someone.
As you pause this weekend to reflect on our Saviors perfect sacrifice, would you consider sharing this post and making a donation to help Samantha and her parents pay for her very expensive medicine and medical treatments?

Samantha Medical Expense Fund Raiser

Mar 1, 2015

In an effort to bring in more $$....

to help pay the bills and keep us fed I have created a fund raising site.   I am also going through the house and pulling everything I can to sell on eBay and various Facebook groups.



I have a couple of friends saving metal cans, soda & veggie etc.,  for us to turn in for cash.  Its not a big amount but every little bit helps.

The thing about being in a situation like this, for any family not just us, is that from Thanksgiving through Christmas folks think more about donating to those in need.  Then when January comes the help stops.  That's what happened to us.  And we stretched those gift cards and $$ as far as we could but now we're out of funds and need help again. 

Do NOT misunderstand what I'm saying.  We are so grateful for everything our friends and family have done for us.  When David's battery died a couple of weeks ago, in the Wal-Mart parking lot, we had enough on a gift card to buy a new battery for only $7 or so. 

So far the mortgage has been paid as well as the gas, water, electricity, internet & phone.   We have the least expensive internet we can have and we have to keep it for job searches and applications as well as for homeschooling.
 
The kids have been so generous with their savings and Daniel is working now so he has bought gas for the cars and even his prescription this past Friday.  And Sarah has bought her supplies for Science Olympiad competition.

So please keep us in your prayers.

1.  That we will trust our Father in Heaven
2.  That David will be encouraged in the face of this trial and disappointment
3.  That I will be wise as Solomon in handling our finances
4.  That the kids will not be overly stressed about the situation
5.  That my constant migraines will cease or at least lessen.





Feb 25, 2015

This is so hard

It totally sucks that when a person is honest when filing for unemployment they get punished. In checking on when the unemployment benefit will start he was told that because we're using a hardship distribution that covers the mortgage and gas, water etc. the amount of unemployment he can get per month is less than $300.
I am so frustrated and scared. I don't even know how to pray anymore.

Feb 15, 2015

Rejoice with those who rejoice....


It really concerns me that young people who claim to be Christians treat each other with so much hate. Even to the point of laughing at a fellow Christians hurt and distress and screaming at them when things don't please them.
Maybe it is a sign of immaturity in the faith or in life. I hope so and in hoping pray that this tendency is soon put to rest.
In the meantime I will pray for those who treat others with spite. Praying that they will be filled with Christs love becaus...e only then can they reflect His love to others.
If you see yourself in this post please, please take the time to search your heart and seek change not only for others sake but for your own.
Bad habits forged over the years are so hard to change.


Romans 12:14-16Amplified Bible (AMP)
14 Bless those who persecute you [who are cruel in their attitude toward you]; bless and do not curse them.
15 Rejoice with those who rejoice [sharing others’ joy], and weep with those who weep [sharing others’ grief].
16 Live in harmony with one another; do not be haughty (snobbish, high-minded, exclusive), but readily adjust yourself to [people, things] and give yourselves to humble tasks. Never overestimate yourself or be wise in your own conceits.

Feb 8, 2015

Should the Gibson Family be banned from Wal-Mart???

I think we may need to stop shopping at Wal-Mart. Our last 2 trips there have ended in "disaster".
Yesterday we stopped to pick u a few groceries and when David went to get the car it wouldn't start and the horn started blaring. (Somehow the theft deterrent system had been activated), After 2 hours of trying everything the manual said, a very sweet man trying all the tricks he knew, (he owns a Toyota and works for a towing company), calling the Toyota dealership then final...ly calling AAA t come tow it home and my Dad to come pick Sarah and me and the groceries up and take them home AND putting a new battery in the car we were feeling rawther hopeless.
Sarah and I got home about 15 minutes before David and the tow truck arrived. The plan at that point was to call the dealership in Monday morning for help.
David got on the internet and after looking at several informative sites discovered that there is a little push button switch on the drivers side floor kind of behind the fender, where you have to stand on your head to find it. This wonderful little switch turns the theft deterrent system off!!!!!


So... a broken down car is not something you can easily be thankful for.
What am I thankful for beside the fact that the car doesn't have to go to the shop?...
1. It was 4.30 or so instead of 11.30 when we would have been back to get Daniel from work.
2. It was daylight for most of the incident.
3. The weather was beautiful even if it was a little chilly.
4. My parents were home and
          A. looked up the phone number for the dealership
          B. were willing to take Sarah, the groceries and me home
5. There was a very helpful gentleman who worked with David for at least an hour trying to get the car working. 
6. Said gentleman even took his family home and came back to continue helping us.
7. AAA was very helpful on the phone
8. The tow truck arrived very quickly
9. The tow driver was a very nice, kind helpful person
10 We had a giftcard so the battery only cost us $10
11. We were stranded somewhere safe
12. with access to bathrooms, and about anything else we might have need.
Sometimes it is hard to be thankful. But if I really look I can find a way to be truly thankful.
The other incident at Wal-MArt? The week before we had picked up some groceries, including a 2 liter Cherry Lemon Sundrop. As the belt moved the groceries forward the drink fell over and landed on a sharp metal corner.
Can you say "Soda Geyser"?
What a mess. It took 3 employees plus Sarah and me helping to get it cleaned up and those 3 employees were so gracious and kind and it was a BIG MESS!!!

Jan 27, 2015

Migraine Brain strikes again


David kindly took me home from Science Olympiad an hour early because the perfume smell was way too much. As soon as I got home I took my meds and got dinner started.
 
When David got home he asked me to pour him a cup of tea. Understand that my hubby only really drinks 1 type of tea. So I have no clue why I asked him if he wanted "French ONION" tea. He drinks "French Vanilla"




Bigelow French Vanilla Tea, 20-Count Boxes (Pack of 6)
Option 2
Onion dip
Option 1



BREAKFASTMENU
Cuppa French What?




Migraine brain at its finest. We got a good laugh out of it.

Usually when I mangle words in sentences I don't realize what I said, and when they ask me "Do you mean xyz" I'll tell them "That's what I said".
This time I realized what I was saying and I said it wrong anyway.



Tatted lace collar  and cuff set, made by my maternal grandpa.



Closer view